Family caregivers move through several seasons or stages as their loved one progresses through treatment in the intensive care unit, to inpatient rehabilitation, and finally back home. But we know that’s only a new beginning- not a finish line. Each stage comes with its own emotional responses and tasks to learn.
ALL TBI SURVIVORS AND CARE GIVERS NEED TO KNOW that improvement is possible, even years later. It always amazes me the amount of healing that can take place in the...Read more »
One thing that has confused me since my TBI is empathy. I want everyone to have it and forgive me when I'm rude, forgetful, and overwhelmed. More than anything, I...Read more »
Being disabled is not fun! A car collision for me in 2000 resulted in a coma, fractured C1-C4 vertebrae, a Traumatic Brain Injury, and one and a half years...Read more »
Writing for families gets little support or recognition in clinical and academic circles. It’s time to rethink biases and disincentives that leave families uninformed and searching for information about brain...Read more »
The autobiography of Brain Injury Survivor and five time cross country charity bicyclist Mike Heikes. Mike formed "helmets For Kids", giving away thousands of free helmets. It tells how Mike...Read more »
As I write this, the calendar says July 5, 2013, but my mind is pulled back to July 5, 1998. That’s because my husband Alan suffered the massive heart attack...Read more »
This week I had the pleasure of being a guest of Kim Justus, host of the Recovery Now show, on Brain Injury Radio. Kim is a brain injury survivor and...Read more »
My wheelbarrow tire suddenly goes flat. With the spring thaw, dirt and debris to be loaded on and carted around, not good timing. What to do? What turns out is a...Read more »
Since my accident, I’ve taken up an interest in nuclear physics. That alone is a bit of an oddity. Most of your Kids don’t realize that all the matter that...Read more »
Four years ago, I survived two Mild Traumatic Brain Injuries, one from a car accident in which I was broadsided while idling at a stoplight. My driver’s side and curtain...Read more »
Featured Brain Injury Articles
As moms and dads, we tend to worry about what our kids will be like when they grow up. Are we doing a good job now? Will they appreciate things that we do now, later in life? Am I doing this right? I have people ask me all the time “how do you do it!?” My answer is ‘usually with lots of prayer’… but when it comes down to it… I don’t even know if I AM ‘doing it’. Most days I wonder …
The weather has been extremely unusual in Canada this year. Normally, we could be outdoors at the beach by now, instead the weather warms only intermittently. Even if the sun doesn’t shine, people can still enjoy outdoor activities, which are essential to a well-balanced and healthy lifestyle
On June 29, 2005, I sustained a Traumatic Brain Injury (TBI) while working as a stagehand and setting up for a Santana concert. My whole life changed in one quick second as my feet left the stage, my head hit the cement floor below, and my whole body went into seizures. Then everything stopped. Many of my friends and co-workers thought I was dead. But I survived! I am still surviving.
People often tell me they would like to write a book or an article about their personal story. The problem is they don’t know where to begin. Writing a book is a tremendous undertaking and putting together an article is challenging too. However, keep your eye on the prize because there is power in your story… power to heal you and to inspire others. Below are some suggestions to help you get started:
When our son, Jeffrey, was born severely brain injured it absolutely rattled our world. We had no indication anything was wrong during the pregnancy. Everything was as it should be. (Utimately, it was a doctor’s error during delivery that was to blame…) Perhaps the greatest challenge to us following Jeffrey’s birth was to learn to stay positive. In the beginning, I remember how often I cried. I sobbed when I saw other kids cooing in strollers. I cried when I saw a parent be too rough with his child in the supermarket. I even cried when I took a bath at night. I just couldn’t imagine how something so dreadful had happened to our little boy. The doctors were never optimistic. We found doctors’ appointments to be extrememly hard to prepare for. We knew the prognosis for our little guy would be far from positive.
It happened on a spring night in May – driving home from church with my younger brother and after dropping off my girlfriend after a Wendys’ dinner. It was about 5-10 minutes before I had to be home while someone (the writer of this email) forgot to use the restroom before he quickly rushed out of his girlfriend’s house to hurry, get home, and not be late…
One of the difficulties in life is to know our limits. Following a brain injury, it is extremely important to know your limits so that you can manage stress, anger outbursts, and emotional and physical fatigue. Yes, it is important to build up stamina and to work hard in recovery, but pacing yourself to increase your abilities will actually work in your favour
Summer is ripe with parties, cook-outs, baseball games, and time in the great outdoors. For a person who has a brain injury, these social events can present a few challenges as well as fun. For the caregiver, summer traditions can be a chance to give the survivor a hand, while practicing letting him/her be more independent.
Mother’s Day and Father’s Day offer children (young and old) a time to express appreciation for the unwavering support and love given by their parents. Over the years, I have met fathers and mothers who are supporting a child with a brain injury. Some of the children are under the age of nineteen, while others are adults. The devotion, love, and sense of commitment demonstrated by these caregivers is enormous – in fact, on many occasions, it astounded me.