Brain Tumors Changes at Home and School

Brain Tumors Changes at Home and School

Gigi McMillan, Sharon Grandinette M.S. & Marilyn Lash M.S.W.
Information for families on coping with child's diagnosis and treatment of brain tumor. Tips for educators on effects of brain tumor on learning, behavior and physical abilities in classroom. Shows how to identify special needs related to brain tumors. 
Item: BRHS
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Full Description

Tip card explains how families and siblings cope with diagnosis and treatment when a child has a brain tumor.  Checklists identify changes that can affect a student’s education including physical limitations, communication difficulties, cognitive changes, academic problems, perceptual motor changes, behavior changes, and social changes. Gives tips on getting help in school and understanding special education.

  • Recommended for use with Brain Tumors in Children and Youths
Details
Item BRHS
Pages 8
Year 2002

Authors

Marilyn Lash, M.S.W.

Marilyn uses her social work experience and research in pediatric rehabilitation to develop sensitive and practical guides for families, educators, and professionals. Marilyn's specialty is helping families cope with the emotional impact of brain injury and developing strategies for negotiating the complex service system. Now Director and Senior Editor of Lash and Associates Publishing/Training, she focuses on developing user friendly publications for families, educators, and clinicians.

 

Sharon Grandinette M.S.

Exceptional Educational Services, established by Sharon Grandinette is dedicated to serving children and adolescents with special needs, specifically those with Acquired Brain Injury. After working with exceptional children for 25 years, Sharon has made a significant impact in this field, and on the lives of all of the people she has assisted.Sharon has an extensive background in the field of Special Education in both public and non-public schools as well as in the post-acute brain injury health care field. She is an instructor at California State University Dominguez Hills in the Graduate Special Education Credential Program, is currently president of CAPHI-The California Association for Physical & Health Impairments, is on the Advisory board for We Can, Pediatric Brain Tumor Support Network and is a board member of AACBIS-the American Academy for the Certification of Brain Injury Specialists.

 

Gigi McMillan

Gigi McMillan, is the Founder and previous Executive Director for We Can, Pediatric Brain Tumor Network, Los Angeles, CA. 1996-2008.  Currently she is at the Children’s Brain Tumor Foundation, New York, NY. Consultant: Nationwide Program Development. Creating new models of collaboration for hospitals, local organizations and parent groups, in targeted metropolitan areas, that encourage local support programs for pediatric brain tumor patients and their families.    She also serves on the National Cancer Institute: Pediatric Central Institutional Review Board, Washington D.C.,
Patient Advocate/Committee member to evaluate pediatric oncology clinical trials and is on the Secretary’s Advisory Committee for Human Research Protection (SACHRP), Washington D.C., Sub-Part A Subcommittee Member, evaluating federal regulations that govern human subject protection.

 

 

 

 

Contents

This tip card helps parents, educators and therapists...
  • help families adjust
  • prepare for a student’s return to school
  • recognize changes in learning
How Families Cope

Tips for families on coping

Children and Siblings

Back to School
  • Common problems that can affect a student’s education
  • Physical limitations
  • Communication difficulties
  • Cognitive changes
  • Academic difficulties
  • Perceptual motor changes
  • Behavior changes
  • Social changes
Getting Help in School
  • Tips for parents for getting help in school
Important Laws on Education

Conclusion

References

Excerpts

How Families Cope

A family is under considerable stress when facing the rare diagnosis of pediatric brain tumor. Long after treatment is over, the life of the child can be affected. Parents often struggle to come to terms with how their child has changed. It can be disheartening to “beat the disease” and then later face unexpected difficulties. These can result in parents helping their child compensate for minor deficits and/or overcome major hurdles.

Families go through many emotions as they learn about the disease, its treatments, side effects, and recovery process. Denial, guilt, anger, anxiety, hopelessness and depression can come in any order and in any combination. These emotions are far from being “bad” or “a waste of time”. They are normal reactions to devastating circumstances.

Many families are surprised to find themselves in a state of grief after their child’s “successful treatment”. Instead of celebrating that their child is now tumor free, they are confounded by a feeling of sorrow and loss. This, too, is normal.

Common problems that can affect a student’s education

  • Evaluate every 3 months

Physical limitations can include...

  • fatigue
  • seizures
  • mobility
  • vision

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