Special Dog Helps with Brain Injury and Disability

Ackerman, My Amazing Canine Companion

By Grace Peay

What’s a dog have to do with brain injury?

Ackerman? Amazing Canine Companion? What is a dog story doing in the Brain Injury Survivor Forum? I can answer that question. My name is Grace and just like many of you, I have a brain injury. A pick-up truck hit me while I was jogging on the sidewalk. But you have all walked that same brain injury path, and what is different about my journey is my wonderful canine companion who has given me back my independence and a new found purpose in life.

It all began almost 10 years ago, when I would have someone take me to a local pet store so I could play with the golden retriever puppies. There was just something about their bright beautiful golden fur and their eyes of love. I normally was nauseated, fatigued and had migraines non-stop, but in the presence of the pups I felt normal again. I didn’t even stutter. It would only last about 3 minutes, but I laughed when I played with them. I didn’t think I would ever laugh again. The only problem was the pups were so energetic I was not able to fathom how to take care of one.

Maybe an older dog would work. Off to the humane society. It was great for about 5 minutes – but I couldn’t walk straight myself – how was I going to walk a big dog? Even the smaller dogs that were full grown were too much.

I was depressed on top of being depressed about having a brain injury.

Special dogs for people with disabilities

german shepherdWait a minute. Maybe I could get one of those dogs trained for people with disabilities. Then I thought, no way… you have to be blind or be in a wheelchair and I just have a brain injury. I’m not disabled enough to have an amazing dog. So I moped around in a bunch of self-pity until I went to a disability fair sponsored by a local HealthSouth Rehab facility.

Immediately upon entering, I saw the cutest little black lab puppy in a yellow cape and a big yellow lab dog in a blue cape. My heart ran over as my brain and body followed along as best as they could. The puppy bounded to me, sliding to a halt. His name was Burn and he was being raised to be a Canine Companion.

“A what?” I said.

“A Canine Companion – a dog that has been trained for people with disabilities other than blindness,” responded the gentleman in the wheelchair with the yellow lab. “This is Candy. She is my dog. I have had her for 6 years.”

“You mean you don’t have to be blind or in a wheelchair to get a special dog?”

“No, there are people with MS, spinal cord injuries, cerebral palsy.”

“Brain injury?” I asked. My heart temporarily stopped waiting for the answer.

“Sure,” a couple resembling Mr. and Mrs. Santa Claus just 30 years younger and 30 lbs. lighter, replied. “Burn is the third puppy that we have puppy raised for Canine Companions for Independence. We get the puppy when it is 8 weeks old and keep it until it is just over a year. We go to puppy obedience classes, and then socialize the puppy by taking it to malls, churches, hospitals, grocery stores; anywhere we can think of a person would need to go. This gets the puppy used to any environment, any situation, so that when it gets paired with a person with a disability, the puppy (or then dog because the dogs are usually 1½ to 2 years old upon graduation) will be able to stay focused on the person.”

“Wow, so you guys are puppy raisers. Then the puppy goes to puppy college and then if the puppy graduates from puppy college it gets matched with a person.”

“Yes, but puppy college is pretty hard. The puppy learns how to open and close doors, pick up keys, pencils, change, turn lights on and off, retrieve telephones, shoes, umbrellas and, of course, give lots of attention, companionship and love.”

“Okay, where do I sign up and how much does it cost?”

“The dogs are free to the person, but there is an application fee, and if you get to go through the 2 week training, there are also food and travel costs involved. And to sign up, just contact Canine Companions for Independence. The application is a bit lengthy and the waiting list is long, sometimes a wait of two years or more.”

“Oh, you don’t know how you guys have made my day.” My brain and body actually felt like it was running along with my heart, out the door and home to get working on the application process.

Applying for a companion…

And work it was. A 7 page application in which I had to tell my sleep habits, eating habits, likes, dislikes, exercise habits – more questions than a dating service (although I am actually guessing – I’ve never filled out a dating service questionnaire, but they did want to know about my family, friends, dates). Oh, also I had to write an autobiography – just a mini-sized one. They were trying to get an idea of what kind of person I was. My doctor had to complete a form, along with my therapist and a personal friend.

Canine Companions for Independence puts so much care, joy and love into each pup that they want to make sure that each applicant accepted to their waiting list would benefit from the dog and also provide a loving home for the dog. It took me about 3 weeks to compete the application and another 6 weeks to hear back.

They invited me to come to their facility for a personal interview, so I went on December 5, 1997. For 3 hours, we talked about my brain injury, my strengths and weaknesses, why I thought a Canine Companion would help me, where I lived, how I lived, everything except what I would do as Miss America. (Didn’t get it? That’s ok. It was just a joke.) I then got to interact with a 7 month old puppy-in-training named Kilpatrick. I got to walk him on his leash, tell him to sit and then have him come to me from across the room. That was the best part: to have a beautiful golden ball of joy rush into my arms and give me kisses without knocking me over. He was so gentle, yet so loving – almost like he knew what I could and couldn’t handle without anybody telling him. Boy, was I exhausted after that interview – but an “okay, this is cool” exhausted.

Then 10 days before Christmas, I got a letter from Canine Companions for Independence:

Dear Grace,

After reviewing your application materials and from your interview, we would like to extend to you an invitation to be placed on our waiting list.

That was all I read. I felt like I had just gotten accepted to attend Yale medical school (my dream before being hit by the truck). I stuttered out a scream and jumped like a rabbit with two broken legs, but it was all with joy. “God,” I said, “I must have done something right; I don’t know what, but a special dog. I’m waiting for my amazing, special dog.”

Now, this is where having a brain injury comes in handy. My ability to keep track of time, whether it was hours, days, or months, stopped ticking when the truck hit me, so the waiting actually didn’t seem too bad.

“HeHeHeHello. AAAA dog. You you have a dog for me. You you think. Come come to Santa Rosa. Oh, yes.”

The “Yes” part didn’t stutter out and neither did making all the arrangements to get to Santa Rosa, California from Indian Rocks Beach, Florida. (Canine Companions has 5 complete training facilities now: Santa Rosa, CA, San Diego, CA, Long Island, New York, Orlando, FL and Ohio.) After an approximately 10 month wait on the waiting list (extremely short and very fortunate on my part), I was off to California with the hopes of returning with an amazing fluffy golden retriever.

Meeting the dogs…

The first day of class was extremely overwhelming and exciting at the same time – the way heaven will probably be on the first day. There were 5 other people in class to be matched up with a dog. We listened to everything the instructors said to us three times harder than anything that had been said to us before. We all had a feeling that if we could be matched up with a special dog – just for us – our lives would be forever changed. Maybe we could regain some of the independence and joy that had been lost.

First up was learning how to give a command and when to give a correction. Out came the first dog. Carpet Dog. Carpet Dog was a 6 inch diameter wood block surrounded by carpet with a smiley face drawn on one end. Each of us took turns all morning getting the wording, timing, and feel of a leash down perfectly with good Carpet Dog. “Okay, let’s break for lunch and when we come back, we will use the real dogs.” “Oh my gosh, real dogs.” We all wanted a dog so bad but were all terrified at the thought of having a live dog at the end of the leash instead of Carpet Dog.

Again, I had the overwhelming feeling coupled with excitement as each dog was brought out of the kennel. We all used that dog to practice our commands and corrections. We learned a few more commands like, “sit, heel, side” and “let’s go” using all the different dogs just one at a time.

“Okay, great work you guys. Here is a quiz to take back to your rooms and bring back tomorrow. We will be using all the dogs the whole time tomorrow, rotating all the dogs with each of you so you can be thinking about who works with you best. See you at 8:30 a.m.”

Making a match…

golden retrieverYeah, I want a fuzzy, fluffy Golden Retriever, God. But then I realized I better just be real grateful I am even there to get an amazing dog – yellow lab, black lab or fuzzy retriever. Tuesday morning we jumped right in learning new commands. The one thing different was no Carpet Dog. We all had a dog to use. And rotate we did. Everybody used all the dogs numerous times. It was really dizzying and that was because I had vertigo. There were 6 of us and about 10 dogs. Scooter, Salinas, Orlena, Iselin, Ackerman, Alexander, Willoby, Tovah, William and Andrea. What a day – trying to remember the name of the dog you had at the time, which command to give, and keep track of which dog you thought you worked with best. It was easily more exhausting than running a marathon.

“Ok, everybody put the dog in the kennel and sit down. I need each of you to write down on this piece of paper the top 3 names of the dogs that you think work best with you. Then tonight all the instructors will go over your choices, your application – especially the portion with the type of lifestyle you have and each dog’s personality and try to come up with the best match possible. We try to go by your wish list but sometimes we see something that will work better for you and we follow our instinct. So fill in the paper, put it on the table and we will see you at 8:30 a.m. tomorrow. We will pass out your dog to you so you can get to know each other the next week and a half of team training.”

Oh, tomorrow. I am 14 hours away from an amazing dog. I liked Ackerman but he wasn’t fuzzy. Since he was the smartest dog in the class, he will probably go to someone who is more disabled. (I had not learned yet that there is no measure of disability.) But I knew who I didn’t want – Scooter. Scooter was a black lab who acted like a scooter. We were supposed to handle the dogs and make sure they didn’t scoop up food or treats off the floor. And Scooter would scoop it up off the floor before you could even get out, “Don’t Scooter.”

“DDD” and the food was gone and my friend who had gone with me to the training was screaming, “He got it! He got it!” at the top of her lungs and everybody turned and looked at me. Scooter would stand there with his head hung sort of low like a vulture waiting to pounce on the next victim, but with this, “It was your fault” look on his face. Oh, no – I did not want him. A fuzzy Golden Retriever. That was what I wanted, so I just quickly put down Iselin, Orlena and Willoby.

All I could think of Tuesday night was how bad I wanted a fuzzy Golden Retriever, and how much I didn’t want Scooter. Then I always quickly told God whatever dog was the best for me – I was just grateful to even be there getting an amazing dog trained specifically for people with disabilities other than blindness. Again, the brain injury was helpful because you really can’t stay focused on any one thing for a long period of time and the fatigue factor involved in Team Training is so high, that Wednesday morning seemed to come fairly quickly. I got to the training room and, in my chair, muttering this silly mantra in my head “Please not Scooter, please not Scooter – but I am grateful to be here, so whichever dog is the best for me God, will be great,” and then back to, “Please not Scooter.”

This was probably one of the first times since the pick-up truck hit me that I had a definite opinion on something. The instructors began passing out the dogs. Salinas, Orlena, Alexander, and Iselin were all eagerly getting acquainted with their partners. Only 2 dogs were left, Scooter and Ackerman, and only 2 humans left, Julia and I. Scooter came out next. He sort of was wagging his tail like he knew something I didn’t. The instructor began walking him towards me. “No God, please no – but I will be grateful.” Just before my next “No God” – right before my first possible heart attack, Scooter stopped and his leash was handed to Julia.

She was so excited and Scooter – I had not seen that dog show so much excitement, as when he was paired with Julia – his tail was wagging, all 4 paws were doing the happy tap. He was like Fred Astaire tap dancing with Ginger Rodgers, only Ginger Rodgers was Julia. And Julia was just as excited to get Scooter. I was so happy for both of them and what surprised me was it wasn’t just being happy because I didn’t get Scooter, but because someone else who could use a dog to gain independence and companionship in an often dependent and companionless life, just got her dream realized.

Meet Ackerman…

As for me, 2 of the fuzzy Golden Retrievers were gone so that left one fuzzy one. The instructor had already gone back and gotten the dog I was matched with, so when Julia and Scooter’s dance of excitement was over, I was handed Ackerman’s leash.

Ackerman? Wait a minute, I thought. Ackerman, he is the best dog in the class. How did I get him? Surely he was going to go to someone more disabled – you know in a wheelchair or something. I looked too normal. I looked down at him and then at all the other dogs, thinking, “Is he as pretty as the other ones?” I wasn’t totally sure about this.

We went through the morning lecture and began the afternoon session practicing commands. Over and over – I was getting so dizzy and so tired. Everybody else was holding up well. I had to sit for a minute and rest, while the others practiced. You know there really is no degree of disabled: no more disabled than you or less disabled than you. We all just have our challenges to overcome and find our way over them and down many paths. I learned this while getting matched with Ackerman. And just as I was sitting in the chair resting, Ackerman leaned up and kissed my hand that was holding on to the chair. I looked down at him and said, “I think I’m starting to like you” and he wagged his tail in agreement.

Ackerman and I have been a team now for 7 years. Everyday I learn something new, and each day I laugh and I am able to live on my own. With Ackerman, even though I have a brain injury and am not the person I was, I feel as though Ackerman has taught me, and continues to teach me, to become the person God meant for me to be.

If you would like more information on Canine Companions for Independence, please contact them at:
www.cci.org

Or write to: CCI, P.O. Box 446, Santa Rosa, CA 95402  (707) 577-1700

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3 responses to “Special Dog Helps with Brain Injury and Disability”

  1. Brent Williams and Marshall Williams says:

    Please inform me as to the protocol to acquiring a service dog for my brain injured 22year old son. In order to become independent, there are s few accommodations he needs to keep him safe and on task. My son’s name is Marshall. He is delightfully gregarious and extroverted. His medical condition of shunted hydrocephalas, right Hemiplegia, and right hemianopsia, are secondary to the Congenital Lyme disease that crossed my blood brain barrier into his brain in utero. This caused a saggital sinus thrombosis which led to bleeding into his left frontal lobe . Johns Hopkins Neonatal Neurologist & others doctors have assured us Marshall would have been a typically developing kid had his mother’s chronic Lyme disease been discovered before she had him. Marshall is a bright, average intelligence, motivated young man whose short term memory deficits & visial field defects require him to have the accommodations of a Service dog & iphone & iphone watch with gps to keep him safe and enable him to find his way to & from work safely. While he can use a GPS a working A constant champanion dog could keep him from stepping or falling off uneven terraine; into ongoing traffic & any other danger his short term memory, visual field (blind spots) or impulsivity make him unaware of.
    The phone/watch will keep him in communication with his parents and can be used as acognitive protesis in remembering, listing task breakdown of his job responsibilities

  2. Anaperla Aureoles says:

    CCI needs to use many more “Shelter dogs” in their programs.

    The program Freedom Service Dog Program as been doing that for a long time. And it has been working rather well. All my service dogs were first adopted from our local shelters and they made great service dogs for me. I have a long history of remode brain damage. There is No perfect anything. Please. Adopt and save a few dogs from death. Anaperla Aureoles and Manish Aghi, Service dog in training.

  3. Zulema Hock says:

    I do not typically comment on blogs such as this but in this instance and in keeping with the comments above I would take this opportunity to say how much I enjoyed your post. Really informative and well written – thanks for sharing it with us!

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