TBI and PTSD: Navigating the Perfect Storm by Marilyn Lash, M.S.W.

When TBI and PTSD Converge

Marilyn Lash

Marilyn Lash

So often people talk about the effects of traumatic brain injury or the consequences of post-traumatic stress disorder as separate conditions—which they are. But for the person who is living with the dual diagnosis of TBI and PTSD, it can be hard to separate them. Just as meteorologists predict “the perfect storm” when unusual and unprecedented conditions move in to create catastrophic atmospheric events, so can the combination of TBI and PTSD be overpowering and destructive for all in its path. The person with TBI and PTSD is living in a state unlike anything previously experienced. For the family, home is no longer the safe haven but an unfamiliar front with unpredictable and sometimes frightening currents and events.

While awareness of PTSD has greatly increased with recently returning service members and veterans, it is not new and nor limited to combat. Anyone—children, adolescents, adults, elderly—who is exposed to a life-threatening trauma can develop PTSD.  Car crashes, shootings, floods, fires, assaults, or kidnapping can happen to anyone anywhereBut the rate of PTSD after brain injury is much higher in veterans than civilians due to their multiple and prolonged exposure to combat. According to O’Connor and Drebing, it is estimated that up to 35% of returning veterans with mild brain injury also have PTSD.

What’s unique about PTSD?

Symptoms of PTSD include:

  • Unwanted and repeated memories of the life-threatening event
  • Flashbacks where the event is relived and person temporarily loses touch with reality
  • Avoidance of people, places, sights, or sounds that are reminders
  • Feelings of detachment from people, even family, and emotional numbness
  • Shame about what happened and was done
  • Survivor guilt with loss of friends or comrades
  • Hypervigilance or constant alertness for threats.

Individuals with PTSD are at increased risk for depression, physical injuries, substance abuse, and sleep problems, which in turn can affect thoughts and actions. These risk factors also occur with brain injury.

PTSD is a mental disorder, but the associated stress can cause physical damage. TBI is a neurological disorder caused by trauma to the brain. It can cause a wide range of impairments and changes in physical abilities, thinking and learning, vision, hearing, smell, taste, social skills, behaviors, and communication. The brain is so complex, the possible effects of a traumatic injury are extensive and different for each person.

Facing the wounds of war

Facing the wounds of war

When PTSD and TBI coexist, it’s often difficult to sort out what’s going on. Changes in cognition such as memory and concentration, depression, anxiety, insomnia, and fatigue are common with both diagnoses. One basically feeds and reinforces the other, so it’s a complicated mix—it’s the perfect storm. It may help to consider and compare changes commonly seen with TBI and PTSD.

Memory

TBI 

A period of amnesia for what went on just before (retrograde amnesia) or after (anterograde amnesia) the injury occurred is common. The length of time (minutes, hours, days, or weeks) of amnesia is an indicator of the severity of the brain injury. For example, the person may have no memory of what happened just before or after the car crash or IED explosion.

PTSD 

In contrast, the person with PTSD is plagued and often haunted by unwanted and continuing intrusive thoughts and memories of what happened. The memories keep coming at any time of day or night in such excruciating detail that the person relives the trauma over and over again.

Sleep 

 TBI 

Sleep disorders are very common after brain injury. Whether it is trouble falling asleep, staying asleep, or waking early, normal sleep patterns are disrupted, making it hard to get the restorative rest of sleep so badly needed.

PTSD

The mental state of hypervigilance interferes with slowing the body and mind down for sleep.  Nightmares are so common with PTSD that many individuals dread going to bed and spend long nights watching TV or lying on the couch to avoid the night’s terrors. Waking up with night sweats so drenching that sheets and clothing are soaked. Flashbacks so powerful that bed partners have been struck or strangled while sleep battles waged.

Isolation

TBI

Many survivors of TBI recall the early support and visits of friends, relatives, and coworkers who gradually visited or called less often over time. Loss of friends and coworkers leads to social isolation, one of the most common long-term consequences of TBI.

PTSD

The isolation with PTSD is different as it is self-imposed. For many it is simply too hard to interact with people. The feeling of exposure outside the safe confines of the house is simply too great. The person may avoid leaving the house as a way of containing stimuli and limiting exposure to possible triggers of memories. As a result, the individual’s world becomes smaller and smaller.

Emotions

TBI

When the areas of the brain that control emotions are damaged, the survivor of a TBI may have what is called “emotional lability.” This means that emotions are unpredictable and swing from one extreme to the other. The person may unexpectedly burst into tears or laughter for no apparent reason. This can give the mistaken impression that the person is mentally ill or unstable.

PTSD

Emotional numbness and deadened feelings are a major symptom of PTSD. It’s hard for the person to feel emotions or to find any joy in life. This emotional shutdown creates distance and conflicts with spouses, partners and children. It is a major cause of loss of intimacy with spouses.

Fatigue

TBI

Cognitive fatigue is a hallmark of brain injury. Thinking and learning are simply harder. This cognitive fatigue feels “like hitting the wall,” and everything becomes more challenging. Building rest periods or naps into a daily routine helps prevent cognitive fatigue and restore alertness.

PTSD

The cascading effects of PTSD symptoms make it so difficult to get a decent night’s sleep that fatigue often becomes a constant companion spilling over into many areas. The fatigue is physical, cognitive, and emotional. Feeling wrung out, tempers shorten, frustration mounts, concentration lessens, and behaviors escalate.

Depression

TBI

Depression is the most common psychiatric diagnosis after brain injury; the rate is close to 50%. Depression can affect every aspect of life. While people with more severe brain injuries have higher rates of depression, those with mild brain injuries have higher rates of depression than persons without brain injuries.

PTSD

Depression is the second most common diagnosis after PTSD in OEF and OIF veterans. It is very treatable with mental health therapy and/or medication, but veterans in particular often avoid or delay treatment due to the stigma of mental health care.

Anxiety

TBI

Rather than appearing anxious, the person acts as if nothing matters. Passive behavior can look like laziness or “doing nothing all day,” but in fact it is an initiation problem, not an attitude. Brain injury can affect the ability to initiate or start an activity; the person needs cues, prompts, and structure to get started.

PTSD

Anxiety can rise to such levels that the person cannot contain it and becomes overwhelmed by feelings of panic and stress.  It may be prompted by a specific event, such as being left alone, or it can occur for no apparent reason, but the enveloping wave of anxiety makes it difficult to think, reason or act clearly.

Talking about the Trauma

TBI

The person may retell an experience repetitively in excruciating detail to anyone who will listen. Such repetition may be symptomatic of a cognitive communication disorder, but it may also be due to a memory impairment. Events and stories are repeated endlessly to the frustration and exasperation of caregivers, friends, and families who have heard it all before.

PTSD

Avoidance and reluctance to talk about the trauma of what was seen and done is a classic symptom of PTSD, especially among combat veterans.

Anger

TBI 

Damage to the frontal lobes of the brain can cause more volatile behavior. The person may be more irritable and anger more easily, especially when overloaded or frustrated. Arguments can escalate quickly, and attempts to reason or calm the person are often not effective. 

PTSD

Domestic violence is a pattern of controlling abusive behavior. PTSD does not cause domestic violence, but it can increase physical aggression against partners.  Weapons or guns in the home increase the risks for family members. Any spouse or partner who feels fearful or threatened should have an emergency safety plan for protection.

Substance Abuse

TBI

The effects of alcohol are magnified after a brain injury. Drinking alcohol increases the risks of seizures, slows reactions, affects cognition, alters judgment, interacts with medications, and increases the risk for another brain injury. The only safe amount of alcohol after a brain injury is none.

PTSD

Using alcohol and drugs to self-medicate is dangerous. Military veterans drink more heavily and binge drink more often than civilian peers. Alcohol and drugs are being used often by veterans to cope with and dull symptoms of PTSD and depression, but in fact create further problems with memory, thinking, and behavior.

Suicide

TBI

Suicide is unusual in civilians with TBI.

PTSD

Rates of suicide have risen among veterans of OEF and OIF.  Contributing factors include difficult and dangerous nature of operations; long deployments and multiple redeployments; combat exposure; and diagnoses of traumatic brain injury, chronic pain, post-traumatic stress disorder, and depression; poor continuity of mental health care; and strain on marital and family relationships. Veterans use guns to commit suicide more frequently than civilians.

Summary

There is no easy “either/or” when it comes to describing the impact of TBI and PTSD. While each diagnosis has distinguishing characteristics, there is an enormous overlap and interplay among the symptoms.  Navigating this “perfect storm” is challenging for the survivors, the family, the caregivers, and the treatment team. By pursuing the quest for effective treatment by experienced clinicians, gathering accurate information, and enlisting the support of peers and family, it is possible to chart a course through the troubled waters to a safe haven

References:

O’Connor, M. & Drebing, C. (2011). Veterans and Brain Injury. In Living Life Fully after Brain Injury: A workbook for survivors, families and caregivers, Eds. Fraser, Johnson & Bell. Youngsville, NC: Lash & Associates Publishing/Training, Inc.

Ehde, D. & Fann, J. (2011). Managing Depression, Anxiety, and Emotional Challenges. In Living Life Fully after Brain Injury: A workbook for survivors, families and caregivers, Eds. Fraser, Johnson & Bell. Youngsville, NC: Lash & Associates Publishing/Training, Inc.

About the author:

Marilyn Lash has over 35 years of experience working with persons with disabilities and their families and is founder and president of Lash and Associates Publishing/Training located in North Carolina. She is part of Hope for the Homefront’s retreat team for women caregivers of wounded warriors. Visit www.lapublishing.com

Source

Special Collection on Brain Injury Journey

Special Collection on Brain Injury Journey

This article is posted with permission from Brain Injury Journey – Hope, Help, Healing, Vol 1, 2014.

http://www.lapublishing.com/Brain-Injury-Journey-Magazine-Special-Collection-Vol-1

 

3 responses to “TBI and PTSD: Navigating the Perfect Storm by Marilyn Lash, M.S.W.”

  1. Mrs L says:

    This article should be posted on the VA’s website for families to read.

    My husband retired from the Navy. He almost died in one accident and was seriouly injured many times with several concussions. He has daily pain from many service-connected injuries.

    His adult kids still refuse to believe he has any brain injury even saying to us they don’t believe it because they “don’t see it.” They think that brain injuries are like what’s depicted on TV, with deformed limbs, slurring, drooling, etc. etc.

    When on visits that lasted one or two weeks long, they insisted that he “deliberately” behaved as he did because he was lazy and trying to make them mad. They accuse me of completely controlling him because I run the whole household and take care of all the finances and insurances and even the Will.

    Because of his kids’ reaction to my telling them he was diagnosed with TBI, he was too embarassed to tell them what doctors checked in order to make the diagnosis and too embarassed to tell them that over the years asked me more and more to run the household and everything else because he couldn’t do it anymore.

    Over the years his situation has slowly worsened. Now those adult kids have cut off all contact with him.

  2. Kenneth Murray says:

    On August 4, 1968, Vietnam, my Marine platoon took a direct hit of two 500 lb bombs of Napalm, from a Marine F4 Phantom jet. Twenty six of my fellow Marine buddies, suffered severe burns and melted skin, from the 3000 degree, gasoline gel. My buddy who the Corpsman had me assist with, was like charcoal and died 45 minutes after the attack. I was closest to the impact but over to the left side, out of the path of the rolling Napalm. I suffered immediate Traumatic Brain Injury. I was 18 years old. Because my injury was not visible to my superiors, and due to a major shortage of “men”, I was forced to complete the remaining seven and a half months of my first tour. And because of a deep bitterness towards the protesting American public, I spent two tours in Vietnam. I fought in 6 Major Operations, including the main Tet Offensive and the two mini Offensives that followed. I was also a Tunnel Rat. It took the VA 38 years to diagnose me with severe and 100% PTSD, ending my ability to hold a job; which I went through many. That was in 2005, the same year my ex-wife called it quits, leaving my three children and myself devastated. Four years later, after three full of days testing, by a University of Penn Hospital Neuropsychologist, I was diagnosed with TBI. The doctor’s report stated that the TBI occurred immediately upon impact of the two bombs. Almost two months after the bombing, I was injured by an explosive, that knocked me back down into my four foot deep fox hole, landing on the back of my head and neck. I knew something was seriously wrong with my brain functions but hid that and my PTSD. At least I thought I was. But my ex-wife, children, family, friends, employers and co-workers and the rest of the world, saw through me. I isolated heavily both alone and in crowds. My life has been a pure hell. And yes; A Perfect Storm. Thanks for your Excellent research and insight. No one has ever explained this horrible combination, as dead on as you have. Sincerely, Kenny: USMC

  3. Hello. Sorry to trouble you but I ran across your web site and noticed you happen to be using the exact same template as me. The only problem is on my website, I’m unable to get the style and design looking like yours. Would you mind e-mailing me at: tadek.walec@o2.pl so I can get this figured out. By the way I have bookmarked your site: http://www.lapublishing.com/blog/2013/veteran-tbi-ptsd-lash/ and will be visiting frequently. Thanks! Kindest regards http://kulturistikadoplnky.cz/

Leave a Reply

Your email address will not be published. Required fields are marked *

 

This site uses Akismet to reduce spam. Learn how your comment data is processed.