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badge2Living with brain injury, whether it is caused by a traumatic injury, stroke, tumor, infection, or illness, is a lifelong journey for survivors, families, and caregivers. The Brain Injury Blog is about more than the care, treatment and rehabilitation of those who survive brain injury. It is about the journey of brain injury from the perspectives of those who live with it as well as those who provide care, treatment and support. Survival is just the first step in living with brain injury. Please join us in the journey of hope after brain injury.

A Good Future Despite Loss!! by Cathy Powers

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Yes, I still am learning how to cope with Bryce’s death, yet, I also am finding that God is there with me. Now, I don’t need to put Him into a box I built, that doesn’t fit anyway. Today, I’m getting free from my own limiting box.

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BRAIN INJURY JOURNEY BULLETIN: GRIEF and LOSS

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What can be said about the process of grief after a trauma (TBI, death, etc.)? If anyone ever thought going through grief was easy, let’s stop them in their tracks. What is known – grief is necessary following trauma for the survivor and caregivers, or if death has happened, those still alive.

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Make Every Day Holiday!!!!

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Put the holiday into perspective — It’s just a day that will be followed by another day and so on. By avoiding complaining, grumbling, or negativity about the celebration of any particular holiday, you will undoubtedly be in a better place. Though life is not as it was pre-brain injury and you most likely can’t celebrate as you once did, you can definitely honor and appreciate the very significant fact that you survived. You are alive!

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BRAIN INJURY JOURNEY BULLETIN: EXECUTIVE FUNCTIONS — Critical and Vital to Organization, Prioritizing, and Behaviors

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The brain, when it is functioning at optimum capacity, works in a unified way allowing us to take in information, process it, and act in a purposeful fashion. Purposeful behavior allows us to live safely in our environment, accomplish goals, and succeed to the best of our ability. Although the brain works in a unified way, the control mechanisms are complex systems. One system is executive functions. When they are compromised, there is a failure to organize and prioritize actions and behaviors.

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Shining the Spotlight on Caregiving Children of TBI by Janet Cromer, R.N.

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Studies have shown that caregiving can negatively impact children emotionally, physically, academically, socially, and behaviorally. Many families affected by brain injury or PTSD know how hard it is to live with the injured person’s angry outbursts and unpredictable behavior.

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BRAIN INJURY JOURNEY BULLETIN: “Caregivers – The Visible/Invisible TBI Support Network”

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Living with a brain injury, for the survivor and the caregiver, is a process of exploration. There are no ready-made answers. Instead, caregivers and survivors – you – have to find your path together. During this exploration phase, the common goal is to help the person with the brain injury regain control of his life. All want him to manage his life and shape it to the best of his ability. In other words, the common goal is to help the person with the brain injury regain autonomy.

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TBI Support Groups – How Important Are They?

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Because our world supports more than twenty-four (24) different time zones, there is always someone available to talk with 24/7. That is one of the major advantages of belonging to support groups on social media. I am so grateful that I stumbled onto them. I finally knew that I and David weren’t alone.

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When Caring Too Much Hurts by Carolyn Rocchio

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There’s a fine line between mothering and smothering, and it can be difficult to know when that line is being crossed. Without realizing it, we find ourselves doing more and more as if raising a child from infancy; however, statistically the injured family member is a young adult, more often a male than a female.

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Grieving Losses due to TBI by Denise Boggs

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Every TBI generates some degree of loss. Each injury, though unique and different, has one thing in common — loss. Whatever the loss may be, recognizing the stages of grieving will help us process the loss.

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Acceptance of TBI by Pamela Taylor

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Yesterday, I heard the words that nobody wants to hear.

“Pam, you have known that you have a traumatic brain injury. We have tried therapies and medication. Your progress has been good. But, we are at a place where your recovery will not go much farther. You have to understand that the brains cells have died and they do not come back. You are closer to the old you than you were, but getting all the way back is not possible.”

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