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Being a caregiver for a spouse, parent, child, or sibling with a brain injury can be a long journey with many rewards, stresses and conflicts. While so much care and attention focuses on the person who has been injured, the needs and feelings of caregivers are often overlooked or ignored. These blog articles focus on understanding the dynamics of caregivers, the challenges faced by caregivers over time, and strategies to support and inform caregivers.

A Good Future Despite Loss!! by Cathy Powers

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Yes, I still am learning how to cope with Bryce’s death, yet, I also am finding that God is there with me. Now, I don’t need to put Him into a box I built, that doesn’t fit anyway. Today, I’m getting free from my own limiting box.

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BRAIN INJURY JOURNEY BULLETIN: GRIEF and LOSS

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What can be said about the process of grief after a trauma (TBI, death, etc.)? If anyone ever thought going through grief was easy, let’s stop them in their tracks. What is known – grief is necessary following trauma for the survivor and caregivers, or if death has happened, those still alive.

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Make Every Day Holiday!!!! by Donna O’Donnell Figurski

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Put the holiday into perspective — It’s just a day that will be followed by another day and so on. By avoiding complaining, grumbling, or negativity about the celebration of any particular holiday, you will undoubtedly be in a better place. Though life is not as it was pre-brain injury and you most likely can’t celebrate as you once did, you can definitely honor and appreciate the very significant fact that you survived. You are alive!

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Shining the Spotlight on Caregiving Children of TBI by Janet Cromer, R.N.

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Studies have shown that caregiving can negatively impact children emotionally, physically, academically, socially, and behaviorally. Many families affected by brain injury or PTSD know how hard it is to live with the injured person’s angry outbursts and unpredictable behavior.

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BRAIN INJURY JOURNEY BULLETIN: “Caregivers – The Visible/Invisible TBI Support Network”

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Living with a brain injury, for the survivor and the caregiver, is a process of exploration. There are no ready-made answers. Instead, caregivers and survivors – you – have to find your path together. During this exploration phase, the common goal is to help the person with the brain injury regain control of his life. All want him to manage his life and shape it to the best of his ability. In other words, the common goal is to help the person with the brain injury regain autonomy.

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TBI Support Groups – How Important Are They?

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Because our world supports more than twenty-four (24) different time zones, there is always someone available to talk with 24/7. That is one of the major advantages of belonging to support groups on social media. I am so grateful that I stumbled onto them. I finally knew that I and David weren’t alone.

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When Caring Too Much Hurts by Carolyn Rocchio

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There’s a fine line between mothering and smothering, and it can be difficult to know when that line is being crossed. Without realizing it, we find ourselves doing more and more as if raising a child from infancy; however, statistically the injured family member is a young adult, more often a male than a female.

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Grieving Losses due to TBI by Denise Boggs

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Every TBI generates some degree of loss. Each injury, though unique and different, has one thing in common — loss. Whatever the loss may be, recognizing the stages of grieving will help us process the loss.

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Changes After Brain Injury-Part 2-Caregivers by Donna O’Donnell Figurski

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Changes After Brain Injury: Behaviors and Emotions (Part 2) — The Caregivers Role By Donna O’Donnell Figurski Anyone who has been a caregiver for a survivor of a brain injury understands that many such caregivers need and want support. An article written by Janet Cromer in “Psychology Today” clearly demonstrated that point, especially for caregivers […]

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Nurture the Living!! by Cathy Powers

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Sowing into people’s lives can be as simple as a smile, being a good listener, donating something you no longer use, or want to keep, to a charity. Or, be kind to someone expecting nothing in return. What are you willing to do for the living around you?

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