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badge2Living with brain injury, whether it is caused by a traumatic injury, stroke, tumor, infection, or illness, is a lifelong journey for survivors, families, and caregivers. The Brain Injury Blog is about more than the care, treatment and rehabilitation of those who survive brain injury. It is about the journey of brain injury from the perspectives of those who live with it as well as those who provide care, treatment and support. Survival is just the first step in living with brain injury. Please join us in the journey of hope after brain injury.

Holidays after Brain Injury

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If you are a brain injury survivor, struggling to cope with daily life, special events can cause an almost intolerable amount of stress and anxiety. You are already dealing with extreme fatigue and have the full time job of rehabilitating from a brain injury. Financial situations and family relationships are often strained. Similar feelings may apply to caregivers as well. Managing the holidays may seem impossible – but there are some strategies you can use to help keep the joy in the season.

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Poem “Forgotten” by TBI Survivor

A poem by Barry Ferguson titled “Forgotten” covering his feelings and experiences having gone through a TBI.

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Marriage and Traumatic Brain Injury: Who is the Caregiver Here?

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I guess for Bill and I, the first thing we had to get over when he was injured was the Traumatic part of the equation. I am sure we have all had trauma in our life, so you know that it keeps coming back from time to time. PTSD, is a real problem and many of us suffer from it, both from TBI and our previous life experiences.

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Gabby Giffords needs to run again

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We have not a few post-trauma things in common, U.S. Rep. Gabrielle Giffords and I. After having our heads stitched back together, stepping onto recovery road, there’s a darn good chance we soon could be embarking on yet another road not taken, the campaign trail.

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Social Dimension TBI Improvement

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Social interactions with other people can be very difficult for a TBI survivor. A person’s personality is the way he interacts with others and the way he responds to various situations. Brain injury can often have cause a person to have heightened emotions and react to situations with anxiety and lack of control. Therefore, a person’s social response to various situations is probably one of the most noticeable dimensions in behavior.

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November is National Family Caregiver Month

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Did you know that National Family Caregiver Month (NFC Month) is observed every November? The National Family Caregiver Association (NFCA) originated the observance in 1997 to focus attention on the more than 65 million family caregivers who provide 80% of the long-term care services in the US. Studies show that family caregivers provide over $375 billion in “free caregiving services” just in care for older adults annually.

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The 80% Rule After Brain Injury

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Fatigue is a common issue following brain injury. Generally, we encourage people to get lots of sleep and to take rest breaks during the day. When a person doesn’t listen to cues their mind or body gives them (i.e. feel as though you have hit the wall; can’t take in anymore information etc.) the physical and emotional fatigue can result in unintended consequences (i.e. outbursts, tears, anger, agitation).

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Never, never, never, never ever give up after Brain Injury!

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I finished filling the black-board with fractions and closed my classroom door. I told myself that my students would finish the unit on fractions tomorrow if it killed me. Those fractions nearly did kill me! If I’d written one more, or one less, my future would have been totally different. I would have avoided that car crash that crashed my life.

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The Astronaut Ballerina After Brain Injury – A Children’s Story

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My story “The Astronaut Ballerina and the Do Not Forget List” is a story aimed at children who have a parent with TBI. The story was written for a class project where we had to create a children’s book describing trauma. I chose TBI because it affects so many people’s lives, and because, in my research, I discovered that there are not very many children’s stories discussing the issues that arise from having a parent with TBI.

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Brain Injury and Fatigue

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Recovering from an illness or injury is hard work. The person is often fatigued and it feels as though it takes all their energy to get dressed and brushed their teeth. This is also what it is like for the individual who has sustained a brain injury.

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