Category Description:

badge2Living with brain injury, whether it is caused by a traumatic injury, stroke, tumor, infection, or illness, is a lifelong journey for survivors, families, and caregivers. The Brain Injury Blog is about more than the care, treatment and rehabilitation of those who survive brain injury. It is about the journey of brain injury from the perspectives of those who live with it as well as those who provide care, treatment and support. Survival is just the first step in living with brain injury. Please join us in the journey of hope after brain injury.

Bereavement, Grieving and Mourning

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We use the words bereavement (or bereaved) and grieving and mourning interchangeably, as though they all mean the same thing. They don’t.

To be bereaved is to be “deprived of a close relation or friend through their death.” In other words, it is the event or “the call” ~ it is what has happened to you that caused you to lose someone or something.

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All of the Above is True

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Have you noticed that living with brain injury sometimes involves contradictions and inconsistencies? My husband Alan had a severe anoxic brain injury following a cardiac arrest. When friends asked how Alan was doing in his recovery my answers often started with,” Well on one hand…”

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The Long Haul

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My son Brian, a 20-year-old college sophomore, sustained a brain injury in a car accident in July of 1985. Brian decided to go to the beach at 2 a.m. with a friend, after drinking too many beers and smoking marijuana. In the pre-dawn hours, still miles from Ocean City, he fell asleep at the wheel.

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Learning to Love a Stranger

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Valentine’s Day is not the only time we think about love and long for a deep connection with a partner. After a person has a brain injury, especially a moderate-severe injury, there may be changes in personality, memory, and communication.

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Daddy’s Little Princess

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I was and still am (and always will be) a huge Daddy’s Girl. My dad always told me he never wanted a boy. He wanted a princess to spoil, and that is what he did.We were more like best friends than father and daughter. Even though there were over a thousand kilometers between us, we were close as could be. It was never out of the ordinary to receive a phone call at 2 in the afternoon and it was my dad at work. He had heard a joke and had to share it with me. He would surprise me with visits, calls and gifts all the time. He was my best friend.

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Ten Tips to Manage New TBI Caregiver Responsibilities

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Are you a new caregiver for a family member who recently sustained a brain injury? Are you struggling with all of the responsibilities and tasks? The crisis stage of brain injury treatment covers the time when your family member is in the intensive care unit, until he/she begins early rehabilitation.

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Ten Tips for New TBI Caregivers

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In 1998, my husband Alan suffered a heart attack and cardiac arrest that led to a severe anoxic brain injury. I can still remember those early days when he was in the intensive care unit (ICU). What comes back is my feeling of everything being out of my control.

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Family Caregivers of Veterans with Brain or Blast Injury Face Huge Strains

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The caregivers and families of severely injured veterans, many of whom have traumatic brain injury and blast injury, face ongoing emotional and financial pressures. There are thousands of unpaid caregivers, mostly parents, spouses and siblings, who assist vets injured in Iraq and Afghanistan, as they struggle to get through each day.

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A Note from Debbie

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I was desperate. I had sustained a brain injury in an automobile accident and was struggling to deal with everyday living activities. After almost burning down my home twice by leaving cooking units on unattended, I finally realized I had a problem and that it wouldn’t go away. Everything in my life that used to be so easy was now almost impossible to do without putting myself, others or property at risk.

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My Family and Brain Injury

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Do you ever get the feeling like you KNOW there is something not quite right but you just can’t put your finger on it!? I am sure everyone has or does… It can’t be just me… can it!?

I felt like that for about 10 years with my husband. OH! Please don’t get me wrong it wasn’t that I thought he was secretly with the CIA or KGB (that would have been way easier to find out I am sure!) He is a great guy that works hard, will lend a hand to anyone that needs it, is willing to drop everything to help someone and is always the first in line to set up fun for the family…

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