Acceptance of TBI’s Hard News: Words Nobody Wants to Hear!! by Pamela Taylor Hearing words nobody wants to hear! Yesterday, I heard the words that nobody wants to hear. “Pam, you have known that you have a traumatic brain injury. We have tried therapies and medication. Your progress has been good. But, we are at […]
Acceptance and adjustment are words easily used but the process is a long journey for survivors, families and caregivers. Rather than a destination, acceptance and adjustment reflects a life time of altering goals, shaping new dreams, mourning what has been lost, and finding new purpose in life.
Brain Injury Adjustments: Self-Reinvention by Rodney Smith The “A-HA” Moment At some point adjustment occurs during the brain injury recovery journey, and there usually is an “a-ha” moment, if you will, where we realize that big and small changes have taken place. It is time to make the best of things as they are. Some […]
Waiting and watching are the two words most often used by family members to describe what this time was like for them. The stress, worry and anxiety may feel overwhelming at times. It may be hard to concentrate or do even the simplest things. This period of coma is among the most difficult for family members because of its seriousness and uncertainty.
Concussion and survivor recovery stories told by Bonnie Nish and 19 authors, share personal experiences of support and hope. It has taken me a while to figure out in what context I wanted to frame why it was I wanted to pull this book together. Why in the middle of my own trauma would I start to think that Concussion and Mild Brain Injury: Just Another Headline was a good idea at all? Over the last few years I have had many gifts bestowed on me. Yes, some are the kind you can hold in your hand. Others however, are more cerebral and the kind you hold in your heart. Tonight I couldn’t find my keys and for an instant I could feel my stomach turn when I remembered last week having left them in the door for hours. It wasn’t that I was worried someone would walk away with them and use them later, it was that it was so reminiscent of that time in my life when I wouldn’t even have remembered putting them in the door in the first place.
A brain injury brings with it a confusing barrage of physical, emotional and cognitive changes that affects the survivor deeply and personally. The simplest expression of this is when we say, “I don’t know who I am anymore.”
This is also known as a loss of humanity. It has profound implications, manifesting itself as confusion, doubt and depression, and making our “recovery” that much more difficult. In my own situation, the hardships I encountered left me thinking, a number of times, that my life wasn’t worth living.
How many promises and resolutions have you kept? Donna Figurski gives tips for tbi survivors, families and caregivers on changing habits for a healthier lifestyle and avoiding the pitfalls of excuses. Wellness is a critical part of rehabilitation and progress and can be built into your daily routine with some adjustments and accommodations.
Losing her sense of self may have been the most painful invisible loss after her brain injury. Hilary Zayed explores the meaning of self and the process of “reinvention” of her new self through her artwork as she rebuilt her identity and explored her future and the meaning of survival. Her new book Regaining a Sense of Self describes the process.
You don’t have to be superman or superwoman to have special talents or powers. Kim Thompson’s brain injury blog explores what we expect from our superheroes and suggests that survivors of TBI are the most powerful heroes just by facing each new day.
What do adjustment and acceptance really mean? How does a person and family really adjust to living with a brain injury? How do they accept the changes in the person and for all their lives. Too frequently, adjustment and acceptance are discussed as though they are the final destinations for recovery after brain injury. How many of you who have survived a brain injury have been told, “You just have to adjust to the changes and go on with your life.” Or “Stop fighting it and accept the fact that you are different now.”