Living Life Fully after Brain Injury: A workbook for survivors, families and caregivers

Living Life Fully after Brain Injury: A workbook for survivors, families and caregivers

Robert T. Fraser, Ph.D., CRC, Kurt L. Johnson, Ph.D., CRC, and Kathleen R. Bell, M.D., Editors

Editors Robert Fraser, Ph.D., Kurt L. Johnson, Ph.D., CRC, and Kathleen Bell, M.D. , along with a impressive group of co-authors have compiled an impressive and practical workbook on the long journey of brain injury. Whether you are a civilian or veteran who has survived a brain injury, a family member or caregiver, a clinician, advocate, or direct care staff, you will find this workbook is a valuable resource and tool for living a full life after brain injury. It pulls together…

· Scientific information from evidence based research

· Range of topics from coma to living in the community

· Compelling personal vignettes to illustrate content

· Tools for personal assessment and practical strategies

· CD with worksheets for personal and professional use.

This is the publication that has been missing up to now in the field of acquired brain injury. With chapters by 19 national experts on brain injury, it is informative at a “cutting edge” level but presented in a format and writing style that is empowering and clear for individuals and families. A CD contains 46 worksheets that can be printed and used by survivors, families and clinicians.

Read an interview with author Richard Fraser.

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Full Description

This workbook is designed as both a reference for in-depth clinical information as well as a hands-on tool for addressing the many challenges of living with a brain injury. As survivors, families and caregivers achieve new goals, encounter setbacks, and meet new challenges, this workbook provides information, strategies, tools, and checklists that will guide the reader through the next phase of recovery.

Twelve chapters discuss critical issues that most survivors, families and caregivers deal with at some stage in recovery after a brain injury. The workbook starts with helping readers understand what happens when the brain is injured and describes the complex medical issues involved for survival. As all families know, medical treatment comes at a cost, and there are many more hidden costs for families. A chapter on financial and health care concerns tackles the often confusing array of disability benefits, financial support, and health insurance. As survivors leave the hospital or rehabilitation setting, the chapter on neuropsychological assessment helps prepare them for returning home and reentering their community. Next is a chapter on the use of medications for the behavioral and emotional changes that often accompany a brain injury, with worksheets to help manage medications and to discuss treatment with your physician.

The next chapters address the changes in behaviors that are so often stressful, confusing and difficult to manage at home. Closely linked to this topic is a chapter on the emotional challenges, including depression and anxiety, that can affect both survivors and caregivers.

Next is a chapter on employment strategies and resources for survivors who are seeking a first time job or are considering returning to work. Closely linked to this is the next chapter on managing cognitive changes and fatigue in order to lead a more productive and fulfilling life.

For those readers with a child who has been injured, there is a special chapter on returning to school after brain injury that focuses on the critical transition to adult life.

The risks of alcohol and other drug use after brain injury are frankly discussed, as substances are too often used in attempts to fight depression, isolation, and other losses. The chapter on veterans discusses not only the consequences of blast injuries and brain trauma but also post traumatic stress disorders (PTSD) as service members return home. Because so many survivors have found themselves socially isolated as time passes since their injury, the final chapter focuses on re-connecting with relationships and community activities.

As you can see from this list, the authors have addressed a wide range of topics and issues that survivors, families and caregivers have said are critical for their recovery.

Details
Item LVLF
ISBN# 9781931117609
Pages 211 pages plus CD with 46 worksheets and forms
Year 2011

Authors

About the Editors

Robert T. Fraser, Ph.D.

He is a professor in the University of Washington's Department of Rehabilitation Medicine, joint with the Departments of Neurological Surgery and Neurology and consultant with Associates in Rehabilitation and Neuropsychology. Dr. Fraser was recently appointed to the Social Security Administration to advise on the revision to the disability eligibility process. He is an active counseling and rehabilitation psychologist, a certified rehabilitation counselor and a certified life care planner who directs Neurological Vocational Services within Rehabilitation Medicine. Within neurological rehabilitation, he has specialized in epilepsy, brain injury, and multiple sclerosis.

Dr. Fraser is author or co-author of more than one hundred publications and co-editor on four texts. He has been awarded numerous Federal grants by the Department of Education (NIDRR and RSA). He has focused on vocational rehabilitation and employment research with evaluation of innovative psychosocial rehabilitation strategies, prediction of vocational rehabilitation outcome across different neurological disabilities, and understanding demand-side employer behavior toward qualified workers with disabilities.

Kurt L. Johnson, Ph.D., CRC

He is a professor in the Department of Rehabilitation Medicine, Head of the Division of Rehabilitation Counseling, and Director of the University of Washington Center for Technology and Disability Studies. He received his Ph.D. in Rehabilitation Psychology from the University of Wisconsin-Madison in 1984 and taught at Florida State University prior to joining the University of Washington in 1990.

He has worked with survivors of traumatic brain injury and their families during all phases of their recovery from acute care to returning to work and the community. He is also an active researcher and teaches at both the undergraduate and graduate levels. Dr. Johnson has managed multiple grants related to disability including the U.W. Model Systems Knowledge Translation Center, the Americans with Disabilities with Act Knowledge Translation Center, the Multiple Sclerosis Rehabilitation Research and Training Center, and grants investigating the use of technologies to aid cognition and navigation for people who have survived brain injury.

Kathleen R. Bell, M.D.

She is a Professor in the University of Washington's Department of Rehabilitation Medicine and has been the Chief of Service at UW Medical Center since 2006. She has been the Medical Director of the Brain Injury Rehabilitation Program at UWMC since l996.

For over 25 years, Dr. Bell has concentrated her clinical care, teaching, and research in the area of brain injury in a variety of settings. She has been the Project Director for the UW Traumatic Brain Injury (TBI) Model System for the past eight years, and her specific TBI research interests have included telephone-based counseling, post-traumatic headache, exercise after TBI, and medical education.

About the Chapter Authors

Samantha M. Behbahani, Psy.D., M.S.ClinPharmCarlos Albizu University, Miller S chool of Medicine/Jackson Memorial Medical Center

Kathleen R. Bell, M.D. - Professor and Director, BRAIN INJURY Model System, University of Washington Department of Rehabilitation Medicine

Charles H. Bombardier, Ph.D. - Professor, Department of Rehabilitation Medicine, University of Washington School of Medicine

Pat Brown, Ed.D. - Clinical Associate Professor, Department of Rehabilitation Medicine, University of Washington

Allison N. Clark, Ph.D. - Assistant Professor, Department of Physical Medicine & Rehabilitation, Baylor College of Medicine; Investigator, Brain Injury Research Center, TIRR Memorial Hermann

Charles Drebing, Ph.D. - Associate Director of Mental Health for Psychosocial Rehabilitation, Bedford Veterans Administration Medical Center; Associate Director, New England Veterans Administration, Mental Illness Research Education and Clinical Center; Assistant Professor, Department of Psychiatry, Boston University School of Medicine

Dawn M. Ehde, Ph.D. - Professor, Department of Rehabilitation Medicine, University of Washington

Jesse R. Fann, MD, MPH - Associate Professor, Department of Psychiatry and Behavioral Sciences, joint with Rehabilitation Medicine and Epidemiology, University of Washington

Robert T. Fraser, Ph.D., CRC- Professor and Director, Neurological Vocational Services Unit, Department of Rehabilitation Medicine, University of Washington

Gwendolyn J. Gerner, Psy.D. - Department of Psychiatry and Behavioral Sciences, Johns Hopkins University School of Medicine, Baltimore, Maryland

Efrain A. Gonzalez, Psy.D., M.S.ClinPharm, ABPP - Miller School of Medicine/Jackson Memorial Medical Center

Kurt L. Johnson, Ph.D., CRC - Professor and Head, Division of Rehabilitation Counseling, Department of Rehabilitation Medicine, University of Washington

Thomas A. Novack, Ph.D. - Professor, Physical Medicine and Rehabilitation, University of Alabama at Birmingham

Maureen K. O'Connor, Psy.D., ABPP-CN - Director of Neuropsychology, Bedford Veterans Administration Medical Center

Angelle M. Sander, Ph.D. - Associate Professor, Department of Physical Medicine & Rehabilitation, Baylor College of Medicine/Harris County Hospital District; Senior Scientist & Director, Brain Injury Research Center, TIRR Memorial Hermann

David J. Schretlen, Ph.D., ABPP - Department of Psychiatry and Behavioral Sciences, Russell H. Morgan Department of Radiology and Radiological Science, Johns Hopkins School of Medicine

Pamela Targett, M.Ed. - Director of Employment Services, Virginia Commonwealth University

Kathryn M. Yorkston, Ph.D. - Professor and Head Division of Speech Pathology, Department of Rehabilitation Medicine, University of Washington

Paul Wehman, Ph.D. - Professor, Department of Physical Medicine and Rehabilitation Counseling, Virginia Commonwealth University

Contents

Ch 1 Medical Issues and the Nature of Recovery after Brain Injury by Kathleen Bell, M.D.

Ch 2 Financial and Healthcare Concerns by Robert Fraser, Ph.D.; Kurt Johnson, Ph.D.

Ch 3 Neuropsychological Assessment by Gwendolyn Gerner, Psy.D.; David Schretlen, Ph.D.

Ch 4 Medications: Psychopharmacology after Brain Injury by Samantha Behbahani, Psy.D.; Efrain Gonzalez, Psy.D.

Ch 5 Managing Behavioral Changes by Thomas Novack, Ph.D.

Ch 6 Managing Depression, Anxiety, and Emotional Challenges by Dawn Ehde, Ph.D.; Jesse Fann, M.D.

Ch 7 Employment Strategies and Resources by Robert Fraser, Ph.D.; Paul Wehman, Ph.D.; Pamela Targett, MEd

Ch 8 Strategies and Accommodations to Manage Cognitive Changes and Fatigue by Kurt Johnson, Ph.D.; Kathryn Yorkston, Ph.D.

Ch 9 Returning to School after Brain Injury: Transition to Adult Life by Pat Brown, Ed.D.

Ch 10 Alcohol and Other Drug Use after Brain Injury by Charles Bombardier, Ph.D.

Ch 11 Veterans and Brain Injury by Maureen O'Connor, Psy.D.; Charles Drebing, Ph.D.

Ch 12 Re-connecting with Relationships and Community Activities by Angelle Sander, Ph.D.; Allison Clark, Ph.D.

Excerpts

Endorsements

“Living Life Fully after Brain Injury provides an excellent introduction and ongoing reference for people with brain injury and their families. It covers a wide range of critical topics from clinical aspects to community re-integration to financial matters about brain injury in a readable, very accessible format.”

James F. Malec, Ph.D., ABPP-Cn, Rp

Professor & Research Director

PM&R, Indiana University School of Medicine and

Rehabilitation Hospital of Indiana

Emeritus Professor of Psychology, Mayo Clinic

 

“This valuable workbook provides many practical suggestions to help persons with TBI and their family members understand and cope with the effects of brain injury. It raises many issues that can be the basis of discussion when seeking help from a variety of rehabilitation specialists. I certainly will encourage patients that I see to utilize it.”

George P. Prigatano, Ph.D.

Newsome Chair, Department of Clinical Neuropsychology

Barrow Neurological Institute

 

“This thoughtful and helpful book, Living Life Fully after Traumatic Brain Injury, is much needed and long over-due after ten years of war whose signature injury is Traumatic Brain Injury. Vets returning from Iraq and Afghanistan and also vets from earlier wars as well as their families, loved ones and caregivers will benefit from this guide to recovery. A must for all veterans, families and significant others dealing with TBI, the workbook makes the information practical and immediately accessible.”

Shad Meshad

President and Founder National Veterans Foundation

 

“What a great Workbook for people whose lives are affected by brain injury! The section on the neuropsych exam really explained things in a way that will help me relate it to people who call the TBI Resource Center. I also really like the checklists and worksheets. So helpful! Thank you.”

Jessica Giordano MA, CIRS

Washington TBI Resource Center Operations Manager

The Brain Injury Association of Washington

 

“This comprehensive and detailed workbook is a wealth of information provided by an impressive group of experts in the field of brain injury, presented in a practically-oriented easy-to-understand format. It will be an invaluable guide to survivors, family members and caregivers, providing clear information and practical assistance as they negotiate the complex and often confusing path toward living well after brain injury.”

Jeffrey S. Smigielski, Ph.D., ABPP-Cn

Consultant in Psychology

Departments of Psychiatry and Psychology and Physical Medicine and Rehabilitation

Mayo Clinic, Assistant Professor, Mayo Medical School

 

“Living Life Fully is an invaluable, practical, clearly-written addition to the bookshelf of families with a brain injury survivor. It is a comprehensive guide to the nature of brain injury, specialists involved in treatment, problematic behaviors common among survivors (and how to handle them), and issues that will arise after hospital discharge. The text was obviously written with interested and intelligent but nonspecialist readers in mind. True to its subtitle, this is indeed a workbook full of useful forms, charts, graphs, website information, etc. An accompanying CD contains all forms in the book, so they can be downloaded for permanent storage an excellent idea, as the paperback book itself may well eventually disintegrate from frequent use. The editors and contributors are owed a huge debt of gratitude from the brain injury community. Families will want this information close at hand for years to come and rehabilitation specialists can recommend it with enthusiasm.”

Bruce Caplan, Ph.D., ABPP, FACRM

Senior Editor, Journal of Head Trauma Rehabilitation

 

“This is a practical guide to living life fully after an acquired brain injury written by the experts in the field. It is full of expert information presented at a level that can be understood by the lay reader. The authors provide the essential background information and then follow this with practical guidance presented in easy to read tables. If every person with a brain injury and their family used this book they would be better able to work with their medical team and maximize their quality of life.”

Stephen T. Wegener, PhD, ABPP

Associate Professor and Director,

Division of Rehabilitation Psychology and Neuropsychology Department of Physical Medicine and Rehabilitation

The Johns Hopkins School of Medicine

Reviews

“Living Life Fully after Brain Injury provides an excellent introduction and ongoing reference for people with brain injury and their families. It covers a wide range of critical topics—from clinical aspects to community re-integration to financial matters—about brain injury in a readable, very accessible format.”

James F. Malec, Ph.D., ABPP-Cn, Rp

Professor & Research Director

PM&R, Indiana University Schoolof Medicine and

Rehabilitation Hospital of Indiana

Emeritus Professor of Psychology, Mayo Clinic

 

This valuable workbook provides many practical suggestions to help persons with TBI and their family members understand and cope with the effects of brain injury. It raises many issues that can be the basis of discussion when seeking help from a variety of rehabilitation specialists. I certainly will encourage patients that I see to utilize it."

George P. Prigatano, Ph.D.

Newsome Chair, Department of Clinical Neuropsychology

Barrow Neurological Institute

 

This thoughtful and helpful book,Living Life Fully after Traumatic Brain Injury, is much needed and long over-due after ten years of war whose signature injury is Traumatic Brain Injury. Vets returning from Iraq and Afghanistan and also vets from earlier wars as well as their families, loved ones and caregivers will benefit from this guide to recovery. A must for all veterans, families and significant others dealing with TBI, the workbook makes the information practical and immediately accessible.”

Shad Meshad,

President and Founder

National Veterans Foundation

 

What a great Workbook for people whose lives are affected by brain injury!  The section on the neuropsych exam really explained things in a way that will help me relate it to people who call the TBI Resource Center. I also really like the checklists and worksheets.  So helpful! Thank you.

Jessica Giordano MA, CIRS

Washington TBI Resource Center Operations Manager

The Brain Injury Association of Washington

 

"This comprehensive and detailed workbook is a wealth of information provided by an impressive group of experts in the field of brain injury, presented in a practically-oriented easy-to-understand format. It will be an invaluable guide to survivors, family members and caregivers, providing clear information and practical assistance as they negotiate the complex and often confusing path toward toward living well after brain injury.”

Jeffrey S. Smigielski, PhD, ABPP-Cn

Consultant in Psychology

Departments of Psychiatry and Psychology and Physical Medicine and Rehabilitation 

Mayo Clinic, Assistant Professor, Mayo Medical School

 

Living Life Fully is an invaluable, practical, clearly-written addition to the bookshelf of families with a brain injury survivor. It is a comprehensive guide to the nature of brain injury, specialists involved in treatment, problematic behaviors common among survivors (and how to handle them), and issues that will arise after hospital discharge. The text was obviously written with interested and intelligent – but nonspecialist – readers in mind. True to its subtitle, this is indeed a “workbook” full of useful forms, charts, graphs, website information, etc. An accompanying CD contains all forms in the book, so they can be downloaded for permanent storage – an excellent idea, as the paperback book itself may well eventually disintegrate from frequent use. The editors and contributors are owed a huge debt of gratitude from the brain injury community. Families will want this information close at hand for years to come and rehabilitation specialists can recommend it with enthusiasm.

Bruce Caplan, Ph.D.,ABPP,FACRM

Senior Editor, Journal of Head Trauma Rehabilitation

This is a practical guide to living life fully after an acquired brain injury written by the experts in the field. It is full of expert information presented at a level that can be understood by the lay reader. The authors provide the essential background information and then follow this with practical guidance presented in easy to read tables. If every person with a brain injury and their family used this book they would be better able to work with their medical team and maximize their quality of life.

Stephen T. Wegener, PhD, ABPP

Associate Professor and Director, Division of Rehabilitation Psychology

and Neuropsychology, Department of Physical Medicine and Rehabilitation,

The Johns Hopkins School of Medicine

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